Our Mission & Vision
The Full Story
About
Despite rapid progress in science and technology, rare disease communities continue to face major challenges. Many patients experience delayed diagnoses, limited treatment options, and a lack of visibility in mainstream healthcare and research. Scientists and startups often struggle to find funding or collaborators, and clinicians may lack the tools to stay updated on the latest advancements.
Rare and Dare was created in response to these gaps: to bring people together, amplify their voices, and turn shared challenges into shared solutions.
Mission
Rare and Dare exists to unite and empower the rare disease community. Our mission is to create a collaborative space where patients, families, scientists, clinicians, investors, and startups can connect, share knowledge, and work together to accelerate research, improve access to therapies, and drive meaningful change. We believe that no one should face a rare disease alone, and that collective action can lead to extraordinary breakthroughs.
Vision
We envision a world where rare disease is no longer a barrier to care, connection, or hope. In this future, patients can access life-changing treatments faster and more easily, while countries implement necessary regulations swiftly and effectively.
We believe that global collaboration is essential: uniting people, knowledge, and resources across borders to drive progress. Through the RARE and DARE platform, we aim to break down silos, spark innovation, and support a worldwide network dedicated to understanding and treating rare conditions. By bridging science, compassion, and technology, we strive to build a future where every rare disease patient has a voice, and a path toward better health.
Ethical Considerations
At Rare and Dare, we are committed to upholding the highest ethical standards in everything we do.
We prioritize the privacy, dignity, and autonomy of all individuals who engage with our platform. Any personal stories, data, or insights shared are done so with informed consent and are used solely to raise awareness and foster understanding. We do not collect or share personal information without permission, and we strive to ensure that all content is respectful, inclusive, and accessible to diverse audiences. Our goal is to create a safe, trusted space where everyone’s voice is valued and protected.