Rare Diseases are not Rare anymore...
1 in every 17 people around you may be affected by a rare disease at some point in their life
How can Rare and Dare help you?
Click on the button which best describes you. We’ll point you to our most relevant pages for support and information within the Rare & Dare community.
About Rare & Dare
Our Vision & Mission
Rare and Dare exists to unite and empower the rare disease community.
Our mission is to create a collaborative space where patients, families, scientists, clinicians, investors, and startups can connect, share knowledge, and work together to accelerate research, improve access to therapies, and drive meaningful change. We believe that no one should face a rare disease alone, and that collective action can lead to extraordinary breakthroughs.
We envision a world where rare disease is no longer a barrier to care, connection, or hope. In this future, patients can access life-changing treatments faster and more easily, while countries implement necessary regulations swiftly and effectively. We believe that global collaboration is essential-uniting people, knowledge, and resources across borders to drive progress
A Rare Condition Journey: Beril Oturmazer
Hear from Beril Oturmazer and her inspiring journey !